Understanding CHARGE Syndrome

'Understanding CHARGE Syndrome' is a free online course that aims to improve understanding and awareness of CHARGE. Members of the public will increase their knowledge of CHARGE-related issues and those in the CHARGE Community will be empowered to create and contribute to personalised CHARGE management plans.

  • Course Active Now
  • Cost: FREE
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Course Outline

The top CHARGE syndrome experts from around the world will improve your understanding and awareness of CHARGE syndrome.  Members of the public will increase their knowledge of CHARGE syndrome and those in the CHARGE Community will be empowered to create and contribute to personalised CHARGE syndrome management plans.

The course is designed for anyone with an interest in CHARGE syndrome including -

  • People living with CHARGE syndrome, their families and carers
  • Medical and nursing professionals
  • Allied health professionals
  • Educational professionals
  • Advocates, service delivery staff, support workers

The course consists of:

MODULE 1: INTRODUCTION TO CHARGE

  • About CHARGE Syndrome
  • Genetics of CHARGE Syndrome
  • Diagnosis using major criteria
  • Diagnosis using minor criteria
  • Overview of Early Development
  • Sensory Issues

MODULE 2: MEDICAL ISSUES

  • CHARGE Checklist
  • Bone Health
  • Cranial Nerve Dysfunction
  • Upper GI
  • Digestion
  • Constipation
  • Feeding Scale
  • Hormonal Issues

MODULE 3: COMMUNICATION

  • Early Communication
  • Early Communication Case Study
  • Communication Sign Language
  • Hearing in CHARGE
  • Hearing Support Systems & Technologies
  • Hearing Testing with CHARGE
  • Risks & Benefits of Auditory Aides

MODULE 4: MULTI-SENSORY IMPAIRMENT

  • Multi-sensory impairment
  • The Forgotten Senses
  • Proprioception Sense
  • Vestibular Sense
  • Research Into Proprioception and Vestibular Senses
  • Vision
  • Vision Drives Posture
  • Postures
  • Vision Glasses
  • Vision - Retina Detachment
  • Self Regulation 

MODULE 5: BEHAVIOUR & PAIN

  • Behaviour in CHARGE
  • The Behaviour Triangle for CHARGE
  • Pain for individuals with CHARGE
  • Pain & Behaviours for individuals with CHARGE

MODULE 6: EDUCATION & ASSESSMENT

  • Educational & School Issues
  • Assessments
  • School
  • Education
  • Transition into Adulthood
  • Assessments
  • Planning for Adulthood Tips
  • Support Intensity Scale
  • HomeTalk & COACH
  • Person-Centred Planning
  • Assessing the Assessment